Autonomic Small Fiber Neuropathy and Ehlers Danlos Syndromes - Prospective Study and Registry
Last updated on July 2021Recruitment
- Recruitment Status
- Recruiting
- Estimated Enrollment
- Same as current
Summary
- Conditions
- Autonomic Neuropathy
- Ehlers-Danlos Syndrome Hypermobility Type
- Postural Tachycardia Syndrome
- Small Fiber Neuropathy
- Design
- Observational Model: Case-ControlTime Perspective: Prospective
Participation Requirements
- Age
- Between 18 years and 80 years
- Gender
- Both males and females
Description
Inclusion of patients with autoimmune autonomic neuropathies/ pure autonomic failure, postural orthostatic tachycardia syndrome, small fiber neuropathies and Ehlers Danlos syndromes in our Register study with follow up visits. Comparison to healthy controls. Planned examinations are laboratory tests...
Inclusion of patients with autoimmune autonomic neuropathies/ pure autonomic failure, postural orthostatic tachycardia syndrome, small fiber neuropathies and Ehlers Danlos syndromes in our Register study with follow up visits. Comparison to healthy controls. Planned examinations are laboratory tests, questionnaires on mental and physical health status and circulatory disorders, attention tests, tilt table testing, sweat function, investigation of small fiber function via quantitative sensory testing as well as the density of nerve fibers in the skin. Measurements are performed at baseline mostly in clinical routine and follow up visits are offered.
Tracking Information
- NCT #
- NCT04310644
- Collaborators
- DLR German Aerospace Center
- Investigators
- Principal Investigator: Andrea Maier University Hospital, Aachen