Clinical Procedures to Support Research in ALS
Last updated on July 2021Recruitment
- Recruitment Status
- Recruiting
- Estimated Enrollment
- Same as current
Summary
- Conditions
- ALS-Frontotemporal Dementia
- Amyotrophic Lateral Sclerosis
- Primary Lateral Sclerosis
- Progressive Muscular Atrophy
- Type
- Observational
- Design
- Observational Model: CohortTime Perspective: Prospective
Participation Requirements
- Age
- Between 18 years and 125 years
- Gender
- Both males and females
Description
The study will consent patients with ALS or related disorders that are receiving care at a clinical center in the CReATe consortium that uses Epic as its electronic health record (EHR) system. The study aims to systematically gather a clinical dataset through the EHR using a standardized approach to...
The study will consent patients with ALS or related disorders that are receiving care at a clinical center in the CReATe consortium that uses Epic as its electronic health record (EHR) system. The study aims to systematically gather a clinical dataset through the EHR using a standardized approach to characterize the natural history of ALS and related diseases.
Tracking Information
- NCT #
- NCT03489278
- Collaborators
- Muscular Dystrophy Association
- National Institute of Neurological Disorders and Stroke (NINDS)
- National Center for Advancing Translational Science (NCATS)
- National Institutes of Health (NIH)
- Investigators
- Principal Investigator: Michael Benatar, MBChB, MS, DPhil University of Miami
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