Registration Study for Rare Type of Pulmonary Hypertension

Summary

Participation Requirements

Description

The main research contents of this registration study includes: Build a baseline database of the rare type of pulmonary hypertension. Collect general information, on-set symptoms and time, laboratory examination, imaging results, right heart catheterization and treatment information. Follow up recru...

The main research contents of this registration study includes: Build a baseline database of the rare type of pulmonary hypertension. Collect general information, on-set symptoms and time, laboratory examination, imaging results, right heart catheterization and treatment information. Follow up recruited patients at regular intervals?6m~1y). Collect information on change in patients condition, laboratory test and treatment. Conduct genetic testing for gene mutation related or hereditary pulmonary hypertension. Link the clinical database to genetic database. Establish bio-bank for serum/plasma, urine, stool, tissues or cells. Establish prognostic study based on the clinical follow-up and genetic database. Draw diagnostic and treatment algorithm for the rare type of pulmonary hypertension. Controls subjects: blood sample and medical data collected once.

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