The PROspective German NOn-CF bronchiectaSIS Patient Registry

Summary

Participation Requirements

Description

To study the epidemiology of non-CF bronchiectasis (NCFB) and to provide an estimate of the distribution (prevalence) of NCFB etiologies across all different levels of health care as well as real-life data regarding the current management of NCFB in Germany To establish feasible investigational stra...

To study the epidemiology of non-CF bronchiectasis (NCFB) and to provide an estimate of the distribution (prevalence) of NCFB etiologies across all different levels of health care as well as real-life data regarding the current management of NCFB in Germany To establish feasible investigational strategies in order to establish the etiology of NCFB To perform observational research into bronchiectasis, particularly in areas where single center datasets are underpowered, such as in rare etiologies or determining markers of prognosis To promote collaborative clinical, basic and translational research in NCFB between German (and European) centers To provide a registry of well phenotyped patients with NCFB in clinical centers potentially eligible for enrolment into clinical trials To track access to healthcare and cost of caring for patients with NCFB over time

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