Recruitment

Recruitment Status
Completed
Estimated Enrollment
8

Inclusion Criterias

Patients with Bethlem myopathy
Patients with Bethlem myopathy

Exclusion Criterias

Patients with disorders that would confound the interpretation of the effect from training (cardiomyopathy, pregnant women, etc.)
Patients who are deemed mentally unfit for cooperation with the training program
Patients with disorders that would confound the interpretation of the effect from training (cardiomyopathy, pregnant women, etc.)
Patients who are deemed mentally unfit for cooperation with the training program

Summary

Conditions
Bethlem Myopathy
Type
Interventional
Design
  • Allocation: N/A
  • Intervention Model: Single Group Assignment
  • Masking: None (Open Label)
  • Primary Purpose: Prevention

Participation Requirements

Age
Between 16 years and 90 years
Gender
Both males and females

Inclusion Criterias

Patients with Bethlem myopathy
Patients with Bethlem myopathy

Exclusion Criterias

Patients with disorders that would confound the interpretation of the effect from training (cardiomyopathy, pregnant women, etc.)
Patients who are deemed mentally unfit for cooperation with the training program
Patients with disorders that would confound the interpretation of the effect from training (cardiomyopathy, pregnant women, etc.)
Patients who are deemed mentally unfit for cooperation with the training program

Locations

Copenhagen, 2100
Copenhagen, 2100

Tracking Information

NCT #
NCT01895283
Collaborators
Not Provided
Investigators
  • Principal Investigator: Christoffer R Vissing, BsC Rigshospitalet, Neuromuscular Research Unit
  • Christoffer R Vissing, BsC Rigshospitalet, Neuromuscular Research Unit